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Mickey Sullivan 5k October 13th, 2019

Huntington’s Disease - The Fight

On January 11th 2006, retired Capt. Denis P. Fleming, of the Fire Department of New York, lost his courageous battle against Huntington’s Disease (HD). FightHD.org was created to honor his legacy and continue the fight for a cure to this devastating hereditary neuro-degenerative disease. For over a decade we have held various fund raising events to support HD families impacted in our community and support leading research partners like University of California Davis, Stem Cell Program and Institute for Regenerative Cures led by Jan Nolta, Phd., Professor & Director and team.

Huntington's Disease is a devastating, hereditary degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason. Eventually, the person with HD becomes totally dependent upon others for this or her care. Sadly HD profoundly affects the lives of entire families-emotionally, socially and economically.

Mission

Team KJ is a group of friends and family that participate in and sponsor events in an effort to raise awareness and money to find a cure for Huntington’s Disease.

Our goal is to help support the families in our community effected by this disease and continue to support medical research that will ultimately find a cure. Team KJ was formed in support of and is named for Kara Jean Fleming who is fighting her own battle against HD.

Fundraisers

  • Capt. Denis P. Fleming FDNY Memorial Golf Classic
  • St. Patrick's Day Annual Rugby Feis
  • Triathlon (Tri-Ing) for a Cure (Sleepy Hollow and West Point)
  • Mickey Sullivan Duathlon
  • Mick Sullivan/ TeamKJ 5K Race-Walk

Frequently Asked Questions

  • Q: Is TeamKJ/FightHD.org a registered 501C3?
  • A: Yes, Filing Year Nov. 2010. Tax ID # 27-0172993
  • Q: What is the Mailing Address for TeamKJ?
  • A: PO Box 1222, Pear River, NY 10965
  • Q: What is TeamKJ Mission?
  • A: To support local families impacted by HD in the Town of Orangetown community and cutting edge research by University of California Davis, Stem Cell Program and Institute for Regenerative Cures.
  • Q: How can I donate?
  • A: Either on our Web Site: www.FightHD.Org or by sending check made out to TeamKJ to our mail address: PO Box 1222, Pearl River NY 10965, Attn. Dan Sullivan
  • Q: How can I Contact TeamKJ about becoming a volunteer or learning more?
  • A: eMail TeamKJ_fightHD@yahoo.com or mgfleming23@gmail.com.
  • Q: Does TeamKJ accept matching Corporate Donations or Sponsorship?
  • A: Yes, please contact us at TeamKJ_fightHD@yahoo.com or mgfleming23@gmail.com.
  • Q: Does TeamKJ have a board?
  • A: Yes, please see Board listing on our Web Site

Donations

Help us find a cure for Huntington’s Disease

Your donation helps HD families cope with the enormous task of caregiving for their loved ones afflicted by this deadly disease, raise awareness about HD and bleeding edge research. Our goal is to raise $20,000 in 2019, please help us reach our goal.

Donate Now

Overall Process in 2019

Raised $18,687 Goal $20,000

How Can You Help!

Help us Fight Huntington's Disease

Two TeamKJ Board members interviewed by Richard French of RNN-TV Sept. 2016.

Kara Jean - Team KJ

Kara Jean Fleming was only a few years in to her career as a devoted special ed elementary teacher when she became symptomatic with HD. After witnessing her father's HD journey first hand and the evil destruction it wrecked emotionally and physically, she did her level best to ignore the early symptoms. However, when the symptoms became more profound and progressive, she painfully realized she had a simliar fate. But, thanks to her extraordinary friends, community and family, she knew she would not face HD alone and that like her warrior dad, would fight this disease so it is indeed the last generation of HD. Kara Jean's unmatched fearlessness and will to live motivates us every day to battle HD.

Your support

To become a member of TeamKJ, Contact Us or visit us on Facebook.

Corporate Sponsors

Become aVolunteer

Help make a difference in the fight against Huntington’s Disease.

Volunteer

FightHD.org Highlights

Contact Us

PO Box 1222, Pear River, NY 10965

(917) 334-6016

TeamKJ_fightHD@yahoo.com